Living with Cystic Fibrosis

Cystic Fibrosis is caused by a genetic mutation that is really quite common. In fact there is a 1 in 25 chance that you carry the mutated gene, even higher if you are of European ancestry. If two carriers have children there is a 25% chance of the child having CF and a further 50% chance that the child will be a carrier for further generations.

….We could give you the medical definition of what it is but that doesn’t explain to someone without CF what the reality is like.

CF is a progressive disease that slowly destroys your body one day at a time. Because of a thick sticky mucus that lines the lungs and organs of those with CF, the body is starved of oxygen and nutrients so that it is constantly in a battle with itself, which means it fails to thrive. In some it causes constant pain, in most it causes constant fatigue. Every morning before someone with CF can even leave the house there’s at least 2 hours of treatments: various nebulisers & physiotherapy to ensure they can function for the day ahead, and for some so that they can function for the next few hours ahead.

That breath you just took reading this, I bet you didn’t even give it a second thought… For a lot of people with CF, their lungs struggle to do something as easy as take a breath. A simple process that millions of people take for granted every single day.

Hospital becomes part of their life, where they take various concoctions of strong intravenous antibiotics which help improve the exacerbations in the lungs, yet they are toxic and destroy other parts of the body; Kidneys & Liver suffer the most from toxic IVs. Kidneys then fail, livers fail, hearts fail, lungs fail. Death becomes a part of life with CF, others with CF they may have built strong bonds with start getting sicker, then suddenly overnight they can be gone. Kids with CF taken before they’ve had a chance to experience life, have their first boyfriend or girlfriend, go to their graduation. Adults who were taken before they had the chance to travel the world, get married, own their own home …..the list is endless.

Scientists at Planetary Biosciences have been working for over 40 years doing clinical research into the mechanisms behind cystic fibrosis. Our highly motivated scientists have been working tirelessly to find therapies that counteract the terrible debilitating effects of this genetic disease. They have been able to find the reasons behind the ongoing inflammation and infections that cause so much damage to CF lungs and have developed a number of therapeutic treatments to combat this effectively. Our company has been formed with the express purpose of translating their amazing breakthroughs into useable therapies that will be available to all that suffer with cystic fibrosis.